( Little Jack scared to DEATH)
What an eventful day!! Yesterday morning I took Jack up to Primary Children's for spina bifida clinic. We hadn't been to clinic in a few months so I thought it would be a quick and easy appointment. Jack does not have any surgery's scheduled right now and we are not working on anything special other than his physical therapy visits so I thought the morning would be pretty uneventful.... I will never go to PCMC and think our visit will be quick again!! We saw the orthopedic surgeon, physical therapy, occupational therapy, a dietitian, and the neurosurgeon!! Oh no we aren't done yet.... one of the neurosurgeons wanted a CAT scan of Jacks head so we "quickly" went and had a CAT scan done! The morning was madness to say the least! So unfortunately the CAT scan showed some fluid around Jacks brain??? This is different than the hydrocephalus we have been warned about since Jack was born. The neurosurgeon decided to watch him over the next month and see if there is any behavioral changes or effects caused by the fluid! A little scary huh. We know that Jack is so strong and has over come so much in his little life already that this is just one more trial we will all learn from! We love you baby Jack!!
13 comments:
My Jackers!! Oh how sad is that picture. I am seriously heartbroken for him. We love him and know that his little spirit is stronger than the rest of ours and that he will do great. No matter what the outcome is. You are in our prayers. Give him hugs and kisses for me...and squeeze those thighs. I miss em!!
Wow!! I cannot believe what you went through and are still going through!! You know your whole family is always in our prayers!!
My goodness that's the saddest face EVER!!! I'm so sorry about your day. We'll be thinking of Jack and the rest of your family and keeping you in our prayers over the next month. You are such a courageous mom! I don't know how you keep it together! Sounds like a Ladies night is needed for sure!!!
Erin you and your family are amazing! You have the best positive and uplifting outlook on things! Keep it up. You and the family are in our thoughts.
Oh, that picture just about made me want to cry! Poor little guy he doesn't understand it all. What a precious boy and he is SO lucky to have you for his mom. Seriously let me know if I can do ANYTHING for you, anything at all! Bridger and Brayden play so well together it actually is a break for ME!!!
Your family is in my prayers.
Jack must have been extra special in Heaven. Keep being strong Jack!!!
Erin you are such an amazingly strong person. You guys are are in our prayers. Jack is the cutest little guy in the world what an amazing baby...
Oh, Erin, you poor thing, and poor Jack, he's a brave little guy isn't he? I'm thinking of you!
You are amazing. I will say it again, you are so strong! Jack is so lucky to have you for his mom. You guys will all be in our prayers.
JACKERS! I just wanna hold and love him! Poor boy
Erin,
What an amazing mom you are I can't imagine the roller coaster ride that you have been through... Keep your spirits up and we will keep you in our thoughts and prayers.... We really take life for granted I know I do and when things like this happens it makes you realize how blessed we really are.... If you ever need anything let me know if you need a night out or someone to hang out with I don't live to far away now and I would love to....
Keep Smiling
Suzanne
Oh Erin, how angels must swarm around you. I know we all say it, but you are one of the strongest examples of faith - your experiences bless all of our lives. Thank you for the strength that you are. Love your guts- kel
My goodness, I had no idea......that picture of Jack made me so sad for him! I feel so deeply for your family and I know that the Lord is there to lift you up and surround you all during all of this! Stay strong and give that little boy a sqeeze from some crazy lady he doesn't even know! That just made me realize that if I were to give him a sqeeze, he would definitely have that same terrified look on his face-so I better not do that.....
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