
What an eventful day!! Yesterday morning I took Jack up to Primary Children's for spina bifida clinic. We hadn't been to clinic in a few months so I thought it would be a quick and easy appointment. Jack does not have any surgery's scheduled right now and we are not working on anything special other than his physical therapy visits so I thought the morning would be pretty uneventful.... I will never go to PCMC and think our visit will be quick again!! We saw the orthopedic surgeon, physical therapy, occupational therapy, a dietitian, and the neurosurgeon!! Oh no we aren't done yet.... one of the neurosurgeons wanted a CAT scan of Jacks head so we "quickly" went and had a CAT scan done! The morning was madness to say the least! So unfortunately the CAT scan showed some fluid around Jacks brain??? This is different than the hydrocephalus we have been warned about since Jack was born. The neurosurgeon decided to watch him over the next month and see if there is any behavioral changes or effects caused by the fluid! A little scary huh. We know that Jack is so strong and has over come so much in his little life already that this is just one more trial we will all learn from! We love you baby Jack!!




